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Hong Kong Hereditary Breast Cancer Family Registry

HK Hereditary Breast Cancer Family Registry Limited (hereinafter called the "The Registry") was established in March 2007 as a charitable institution for data collection, conduct research on hereditary breast cancer and to raise the awareness of the disease. With the consent of individuals and their families in the Hong Kong hereditary and high risk breast cancer programme (HRBCP), the clinical information would be transferred to The Registry for data analysis and research purposes.

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Although cancer cure remains elusive, new approaches to prevention, early diagnosis and treatment are making the disease less devastating and more curable.

Training in genetic counseling
Genetic counseling is an important aspect of genetic test. The Registry is dedicated to support health care professionals to be trained in genetic counseling so that guidance and coping skills could be shared with high risk individuals and families.

Provide a free access to genetic screening and consultation
Genetic test results will provide useful information about an individual's cancer risk. The Registry is keen to support the less privileged and their families in the HRBCP to undergo genetic testing for BRCA mutations with subsequent aim for intensive screening and to provide advice on preventive measures.

Increase the awareness of hereditary breast cancer
Community outreach programmes would be organized to strengthen the knowledge of such disease in the public and to increase the understanding of hereditary cancers related to the BRCA gene mutation.

Pamphlets and booklets will be produced and disseminated to health professionals and the local community.

Research
There is increasing data suggesting that certain clinicopatholgical and genetic features of breast cancer is ethnic specific. Research specific to Chinese/ Asia population will help improve the management of breast cancer in Asia by tailor-making it specifically to our needs. Collaborative research with international centers will increase understanding ethnic differences in hereditary cancers.

Public Education
Radio Interview | Estee Lauder Breast Cancer Campaign | Professional Talks | Public Talks